The Tuesday after Labor Day, my parents met with the Gastroenterologist regarding the stomach biopsy results. It showed definite inflammation of the stomach lining, but the cause was uncertain. When she met with her team of doctors on Thursday, they temporarily ruled-out GVHD, but were going to keep a close eye on it. Since she had lost 10 pounds from not being able to eat much or even keep food down, they decided to give her TPN (Total Parenteral Nutrition) with Carafate. TPN is given intravenously (along with the daily ritual of saline and magnesium). Carafate is swallowed an hour before eating to protect the stomach lining. Since then, this has helped, but it's still difficult to eat much.
Yesterday, September 18th, was a difficult day. Her temperature spiked and she ended up being admitted back at LDS hospital. They took blood from each of the three ports to culture. Her fever kept going up and down, so they mainly treated the symptoms while waiting. At 6pm tonight, they finally got the results that all three lines were infected.
As of 11:30pm she's feeling a little better, walking better, and her headache is finally gone. Now it's a waiting game while her symptoms get better. We still don't know the cause, just what it is and where. The doctors and nurses are watching her carefully as she heals. Hopefully she'll be able to return home soon...we'll keep you posted.
Thanks for the update! Julie is definitely in our prayers!
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